Medical management and intervention (using neurosurgical resection or stereotactic radiosurgery) versus medical management alone for symptomatic brain cavernoma: the CARE pilot RCT · Patient and public involvement
Patient and public involvement
CC BY 4.0 · National Institute for Health and Care Research · approximately 1 min read
This section of the synopsis was written by David White, on behalf of the PAG.
Aim
The aim was to bring the PCPI voice into all aspects of the CARE pilot trial, to ensure that the project was accessible and appropriate for potential participants irrespective of age, pregnancy, race, ethnicity or mental capacity. This included advice on: the grant application and its plain language summary; methods of recruitment; the design, language and content of the project’s documentation (including the project’s patient/parents/guardian information leaflets, informed consent forms and the design, content and accessibility of progress reports and newsletters for participants); and the evolving findings of the QRI. The PCPI partner sought to promote enrolment in the CARE pilot RCT to potential participants.
Attribution. Rustam Al-Shahi Salman; Neil Kitchen; Laura Forsyth; Vijeya Ganesan; Peter S Hall; Kirsty Harkness et al. (2025). Medical management and intervention (using neurosurgical resection or stereotactic radiosurgery) versus medical management alone for symptomatic brain cavernoma: the CARE pilot RCT. National Institute for Health and Care Research. Copyright © 2025 Al-Shahi Salman et al. Licensed under CC BY 4.0. NCBI Bookshelf NBK617151. CC BY 4.0. Original source ↗. Text reproduced from the Bookshelf XML without changing wording; figures, images and supplements are not reproduced.