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A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme · References

References

CC BY 4.0 · National Institute for Health and Care Research · approximately 16 min read

  1. Fitch MI. Needs of patients living with advanced disease. Can Oncol Nurs J 2005;15:230–42. 10.5737/1181912x15423023516405207
  2. Higginson IJ, Shipman C, Gysels M, White P, Barclay S, Forrest S, et al. Scoping Exercise on Generalist Services for Adults at the End of Life: Research, Knowledge, Policy and Future Research Needs. London: National Coordinating Centre for Service Delivery and Organisation; 2007.
  3. Currow DC, Abernethy AP, Fazekas BS. Specialist palliative care needs of whole populations: a feasibility study using a novel approach. Palliat Med 2004;18:239–47. 10.1191/0269216304pm873oa15198137
  4. Gill TM, Gahbauer EA, Han L, Allore HG. Trajectories of disability in the last year of life. N Engl J Med 2010;362:1173–80. 10.1056/NEJMoa090908720357280
  5. Grande G, Stajduhar K, Aoun S, Toye C, Funk L, Addington-Hall J, et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med 2009;23:339–44. 10.1177/026921630910487519304804
  6. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage 2006;31:58–69.16442483
  7. Moens K, Higginson IJ, Harding R, EURO IMPACT. Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review. J Pain Symptom Manage 2014;48:660–77. 10.1016/j.jpainsymman.2013.11.00924801658
  8. Grande GE, Austin L, Ewing G, O’Leary N, Roberts C. Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial. BMJ Support Palliat Care 2017;7:326–34. 10.1136/bmjspcare-2014-000829
  9. Burns E, Prigerson HG, Quinn SJ, Abernethy AP, Currow DC. Moving on: factors associated with caregivers’ bereavement adjustment using a random population-based face-to-face survey. Palliat Med 2018;32:257–67. 10.1177/026921631771737028627971
  10. Kingston A, Wohland P, Wittenberg R, Robinson L, Brayne C, Matthews FE, et al. Is late-life dependency increasing or not? A comparison of the Cognitive Function and Ageing Studies (CFAS). Lancet 2017;390:1676–84.28821408
  11. World Health Organization. Palliative Care. URL: http://who.int/cancer/palliative/definition/en/ (accessed 12 December 2029).
  12. The Economist Intelligence Unit. The 2015 Quality of Death Index: Ranking Palliative Care Across the World. London: The Lien Foundation; 2015.
  13. Hospice UK. Hospice Accounts: Analysis of the Accounts of UK Charitable Hospices for the Year Ended 31 March 2017. London: Hospice UK; 2018.
  14. Hughes-Hallett T, Craft A, Davies C, Mackay I, Nielsson T. Funding the Right Care and Support for Everyone: Creating a Fair and Transparent Funding System; the Final Report of the Palliative Care Funding Review. London: Palliative Care Funding Review; 2011.
  15. Tebbit P. Population-based Needs Assessment for Palliative and End of Life Care. London: National Council for Palliative Care; 2008.
  16. Lancaster H, Finlay I, Downman M, Dumas J. Commissioning of specialist palliative care services in England. BMJ Support Palliat Care 2018;8:93–101. 10.1136/bmjspcare-2016-001119
  17. Allsop MJ, Ziegler LE, Mulvey MR, Russell S, Taylor R, Bennett MI. Duration and determinants of hospice-based specialist palliative care: a national retrospective cohort study. Palliat Med 2018;32:1322–33. 10.1177/026921631878141729874525
  18. Gaertner J, Siemens W, Meerpohl JJ, Antes G, Meffert C, Xander C, et al. Effect of specialist palliative care services on quality of life in adults with advanced incurable illness in hospital, hospice, or community settings: systematic review and meta-analysis. BMJ 2017;357:j2925. 10.1136/bmj.j292528676557
  19. Sleeman KE, Davies JM, Verne J, Gao W, Higginson IJ. The changing demographics of inpatient hospice death: population-based cross-sectional study in England, 1993-2012. Palliat Med 2016;30:45–53. 10.1177/026921631558506425991729
  20. Rosenwax L, Spilsbury K, McNamara BA, Semmens JB. A retrospective population based cohort study of access to specialist palliative care in the last year of life: who is still missing out a decade on? BMC Palliat Care 2016;15:46. 10.1186/s12904-016-0119-227165411
  21. Roos NP, Montgomery P, Roos LL. Health care utilization in the years prior to death. Milbank Q 1987;65:231–54.3614142
  22. Full Fact Team. What Is the NHS Budget? URL: https://fullfact.org/health/what-is-the-nhs-budget/ (accessed 1 March 2019).
  23. Murtagh FE, Bausewein C, Verne J, Groeneveld EI, Kaloki YE, Higginson IJ. How many people need palliative care? A study developing and comparing methods for population-based estimates. Palliat Med 2014;28:49–58. 10.1177/026921631348936723695827
  24. Etkind SN, Bone AE, Gomes B, Lovell N, Evans CJ, Higginson IJ, et al. How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC Med 2017;15:102. 10.1186/s12916-017-0860-228514961
  25. Bone AE, Gomes B, Etkind SN, Verne J, Murtagh FEM, Evans CJ, et al. What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death. Palliat Med 2018;32:329–36. 10.1177/026921631773443529017018
  26. de Meijer C, Wouterse B, Polder J, Koopmanschap M. The effect of population aging on health expenditure growth: a critical review. Eur J Ageing 2013;10:353–61. 10.1007/s10433-013-0280-x28804308
  27. Martikainen P, Murphy M, Metsä-Simola N, Häkkinen U, Moustgaard H. Seven-year hospital and nursing home care use according to age and proximity to death: variations by cause of death and socio-demographic position. J Epidemiol Community Health 2012;66:1152–8. 10.1136/jech-2011-20075622544922
  28. Donabedian A. The quality of care. How can it be assessed? JAMA 1988;260:1743–8.3045356
  29. Higginson IJ, Evans CJ. What is the evidence that palliative care teams improve outcomes for cancer patients and their families? Cancer J 2010;16:423–35.20890138
  30. Higginson IJ, McCrone P, Hart SR, Burman R, Silber E, Edmonds PM. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage 2009;38:816–26. 10.1016/j.jpainsymman.2009.07.00219833477
  31. Edmonds PM, Hart SR, Wei G, Vivat B, Burman R, Silber E, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler 2010;16:627–36.20305044
  32. Rabow MW, Dibble SL, Pantilat SZ, McPhee SJ. The comprehensive care team: a controlled trial of outpatient palliative medicine consultation. Arch Intern Med 2004;164:83–91. 10.1001/archinte.164.1.8314718327
  33. Finlay IG, Higginson IJ, Goodwin DM, Cook AM, Edwards AG, Hood K, et al. Palliative care in hospital, hospice, at home: results from a systematic review. Ann Oncol 2002;13(Suppl. 4):257–64. 10.1093/annonc/mdf66812401699
  34. Goodwin DM, Higginson IJ, Edwards AG, Finlay IG, Cook AM, Hood K, et al. An evaluation of systematic reviews of palliative care services. J Palliat Care 2002;18:77–83.12164104
  35. Gomes B, Calanzani N, Curiale V, McCrone P, Higginson IJ. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013;6:CD007760. 10.1002/14651858.CD007760.pub2
  36. Rayner L, Price A, Evans A, Valsraj K, Hotopf M, Higginson IJ. Antidepressants for the treatment of depression in palliative care: systematic review and meta-analysis. Palliat Med 2011;25:36–51. 10.1177/026921631038076420935027
  37. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010;363:733–42. 10.1056/NEJMoa100067820818875
  38. Royal College of Physicians. Palliative Care Services: Meeting the Needs of Patients: Report of a Working Party. London: Royal College of Physicians; 2007.
  39. Field D, Addington-Hall J. Extending specialist palliative care to all? Soc Sci Med 1999;48:1271–80.10220025
  40. Department of Health and Social Care (DHSC). End of Life Care Strategy. London: DHSC; 2008.
  41. Brownlee S, Chalkidou K, Doust J, Elshaug AG, Glasziou P, Heath I, et al. Evidence for overuse of medical services around the world. Lancet 2017;390:156–68.28077234
  42. Glasziou P, Straus S, Brownlee S, Trevena L, Dans L, Guyatt G, et al. Evidence for underuse of effective medical services around the world. Lancet 2017;390:169–77.28077232
  43. Morrison RS. Models of palliative care delivery in the United States. Curr Opin Support Palliat Care 2013;7:201–6. 10.1097/SPC.0b013e32836103e523635879
  44. National Casemix Office and Health and Social Care Information Centre. Casemix Companion. London: Health and Social Care Information Centre; 2016.
  45. NHS Digital. Definition of Casemix 2018. URL: https://digital.nhs.uk/services/national-casemix-office/our-definitions-remit-and-deliverables (accessed 28 August 2020).
  46. Eagar K, Gordon R, Hodkinson A, Green J, Eagar L, Erven J, et al. The Australian National Sub-Acute and Non-Acute Casemix Classification (AN-SNAP): Report of the National Sub-Acute and Non-Acute Casemix Classification Study. Wollongong, NSW: University of Wollongong; 1997.
  47. Averill RF. The evolution of casemix measurement using DRGs: past, present and future. Stud Health Technol Inform. 1994;14:75–83. PMID: 10163701.10163701
  48. Roger France FH. Casemix use in 25 countries: a migration success but international comparisons failure. Int J Med Inform 2003;70:215–9.12909172
  49. Wilberforce M, Tucker S, Brand C, Abendstern M, Jasper R, Stewart K, Challis D. Community mental health teams for older people: variations in casemix and service receipt (II). Int J Geriatr Psychiatry 2015;30:605–13. 10.1002/gps.419025200004
  50. Halter M, Joly L, de Lusignan S, Grant RL, Gage H, Drennan VM. Capturing complexity in clinician casemix: classification system development using GP and physician associate data. BJGP Open 2018;2:bjgpopen18X101277. 10.3399/bjgpopen18X101277
  51. Eagar K, Gordon R, Green J, Smith M. An Australian casemix classification for palliative care: lessons and policy implications of a national study. Palliat Med 2004;18:227–33. 10.1191/0269216304pm876oa15198135
  52. Lee LA, Eagar KM, Smith MC. Subacute and non-acute casemix in Australia. Med J Aust 1998;169:S22–5.9830406
  53. Eagar K, Cromwell D, Kennedy C, Lee L. Classifying sub-acute and non-acute patients: results of the New South Wales Casemix Area Network study. Aust Health Rev 1997;20:26–42. 10.1071/ah97002610169365
  54. Turner-Stokes L, Sutch S, Dredge R, Eagar K. International casemix and funding models: lessons for rehabilitation. Clin Rehabil 2012;26:195–208. 10.1177/026921551141746822070989
  55. Guo P, Dzingina M, Firth AM, Davies JM, Douiri A, O’Brien SM, et al. Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol. BMJ Open 2018;8:e020071. 10.1136/bmjopen-2017-020071
  56. Currow DC, Allingham S, Yates P, Johnson C, Clark K, Eagar K. Improving national hospice/palliative care service symptom outcomes systematically through point-of-care data collection, structured feedback and benchmarking. Support Care Cancer 2015;23:307–15. 10.1007/s00520-014-2351-825063272
  57. Eagar K, Green J, Gordon R. An Australian casemix classification for palliative care: technical development and results. Palliat Med 2004;18:217–26. 10.1191/0269216304pm875oa15198134
  58. Sheers D. Palliative Care Funding Pilots Update. London: Department of Health and Social Care; 2014. URL: www.ncpc.org.uk/sites/default/files/Dilwyn%20Sheers.pdf (accessed 28 August 2020).
  59. Masso M, Allingham SF, Banfield M, Johnson CE, Pidgeon T, Yates P, Eagar K. Palliative Care Phase: inter-rater reliability and acceptability in a national study. Palliat Med 2015;29:22–30. 10.1177/026921631455181425249239
  60. Gill A. Development of Healthcare Resource Groups for Cancer in England. Patient Classification Systems International Conference. Ljubljana 2005.
  61. Turner-Stokes L. Politics, policy and payment – facilitators or barriers to person-centred rehabilitation? Disabil Rehabil 2007;29:1575–82.17922328
  62. National Institute for Clinical Evidence. Improving Supportive and Palliative care for Adults with Cancer. Cancer service guideline [CSG4]. London: NICE; 2004.
  63. Department of Health and Social Care (DHSC). Palliative Care Service Delivery Framework and Funding Model Review Literature Review. London: DHSC and Apex Consulting; 2008.
  64. Poulos CJ, Eagar K. Determining appropriateness for rehabilitation or other subacute care: is there a role for utilisation review? Aust New Zealand Health Policy 2007;4:3.17352832
  65. Knapp M, Beecham J. Costing mental health services. Psychol Med 1990;20:893–908. 10.1017/s003329170003659x2126630
  66. Gomes B, McCrone P, Hall S, Koffman J, Higginson IJ. Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study. BMC Cancer 2010;10:400. 10.1186/1471-2407-10-40020678203
  67. Bédard M, Molloy DW, Squire L, Dubois S, Lever JA, O’Donnell M. The Zarit Burden Interview: a new short version and screening version. Gerontologist 2001;41:652–7. 10.1093/geront/41.5.65211574710
  68. Higginson IJ, Gao W, Jackson D, Murray J, Harding R. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J Clin Epidemiol 2010;63:535–42. 10.1016/j.jclinepi.2009.06.01419836205
  69. Cheak-Zamora NC, Wyrwich KW, McBride TD. Reliability and validity of the SF-12v2 in the medical expenditure panel survey. Qual Life Res 2009;18:727–35. 10.1007/s11136-009-9483-119424821
  70. Tan SB, Williams AF, Kelly D. Effectiveness of multidisciplinary interventions to improve the quality of life for people with Parkinson’s disease: a systematic review. Int J Nurs Stud 2014;51:166–74. 10.1016/j.ijnurstu.2013.03.00923611510
  71. Abernethy AP, Shelby-James T, Fazekas BS, Woods D, Currow DC. The Australian modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481]. BMC Palliat Care 2005;4:7. 10.1186/1472-684x-4-716283937
  72. Schildmann EK, Groeneveld EI, Denzel J, Brown A, Bernhardt F, Bailey K, et al. Discovering the hidden benefits of cognitive interviewing in two languages: the first phase of a validation study of the Integrated Palliative care Outcome Scale. Palliat Med 2016;30:599–610. 10.1177/026921631560834826415736
  73. Murtagh FE, Ramsenthaler C, Firth A, Groeneveld EI, Lovell N, Simon ST, et al. A brief, patient- and proxy-reported outcome measure in advanced illness: validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliat Med 2019;33:1045–57. 10.1177/026921631985426431185804
  74. Mather H, Guo P, Firth A, Davies JM, Sykes N, Landon A, et al. Phase of Illness in palliative care: cross-sectional analysis of clinical data from community, hospital and hospice patients. Palliat Med 2018;32:404–12. 10.1177/026921631772715728812945
  75. Pinto C, Firth AM, Groeneveld EI, Guo P, Sykes N, Murtagh FE. Patients’ views on care and their association with outcomes in palliative care. Palliat Med 2019;33:467–9. 10.1177/026921631983138330819049
  76. Addington-Hall J, Hunt K, Rowsell A, Heal R, Hansford P, Monroe B, et al. Development and initial validation of a new outcome measure for hospice and palliative care: the St Christopher’s Index of Patient Priorities (SKIPP). BMJ Support Palliat Care 2014;4:175–81. 10.1136/bmjspcare-2012-000352
  77. Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, et al. The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. Eur J Cancer 2006;42:55–64.16162404
  78. Etkind SN, Bristowe K, Bailey K, Selman LE, Murtagh FE. How does uncertainty shape patient experience in advanced illness? A secondary analysis of qualitative data. Palliat Med 2017;31:171–80. 10.1177/026921631664761027129679
  79. Pask S, Pinto C, Bristowe K, van Vliet L, Nicholson C, Evans CJ, et al. A framework for complexity in palliative care: a qualitative study with patients, family carers and professionals. Palliat Med 2018;32:1078–90. 10.1177/026921631875762229457743
  80. Bronfenbrenner U. Ecological Models of Human Development. In Gauvain M, Cole M, editors. Readings on the Development of Children. 2nd edn. New York, NY: W. H. Freeman and Company; 1994. pp. 37–43.
  81. Firth AM, O’Brien SM, Guo P, Seymour J, Richardson H, Bridges C, et al. Establishing key criteria to define and compare models of specialist palliative care: a mixed-methods study using qualitative interviews and Delphi survey. Palliat Med 2019;33:1114–24. 10.1177/026921631985823731250704
  82. Jünger S, Payne SA, Brine J, Radbruch L, Brearley SG. Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: recommendations based on a methodological systematic review. Palliat Med 2017;31:684–706. 10.1177/026921631769068528190381
  83. Cleeland CS, Reyes-Gibby CC. When is it justified to treat symptoms? Measuring symptom burden. Oncology (Williston Park) 2002;16(9 Suppl. 10):64–70.12380956
  84. von der Gracht HA. Consensus measurement in Delphi studies: review and implications for future quality assurance. Technol Forecast Soc Change 2012;79:1525–36. 10.1016/j.techfore.2012.04.013
  85. Trevelyan EG and Robinson PN. Delphi methodology in health research: how to do it? Eur J Integr Med 2015;7:423–8. 10.1016/j.eujim.2015.07.002
  86. Collins GS, Reitsma JB, Altman DG, Moons KG. Transparent reporting of a multivariable prediction model for individual prognosis or diagnosis (TRIPOD): the TRIPOD statement. BMJ 2015;350:g7594. 10.1136/bmj.g759425569120
  87. NHS England and Finance/Strategic Finance/Pricing Team. Developing a New Approach to Palliative Care Funding. Leeds: NHS England; 2015.
  88. Eagar K. The Australian National Sub-Acute and Non-Acute Patient casemix classification. Aust Health Rev 1999;22:180–96. 10.1071/ah99018010662228
  89. Monitor. Approved Costing Guidance: Updated February 2016. London: Monitor; 2016. URL: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/498792/ACG_february_2016_final_with_cover.pdf (accessed 28 August 2020).
  90. Green SB. How many subjects does it take to do a regression analysis. Multivariate Behav Res 1991;26:499–510. 10.1207/s15327906mbr2603_726776715
  91. Wilson VanVoorhis CR, Morgan BL. Understanding power and rules of thumb for determining sample sizes. Tutor Quant Methods Psychol 2007;3:43–50.
  92. Guo P, Pinto C, Edwards B, Pask S, Firth A, O’Brien S, Murtagh FE. Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: a qualitative interview study. Palliat Med 2022;36:124–34. 10.1177/0269216321104337134477022
  93. Pinnock H, Kendall M, Murray SA, Worth A, Levack P, Porter M, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011;342:d142. 10.1136/bmj.d14221262897
  94. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77–101. 10.1191/1478088706qp063oa
  95. Brighton LJ, Pask S, Benalia H, Bailey S, Sumerfield M, Witt J, et al. Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research. Res Involv Engagem 2018;4:14. 10.1186/s40900-018-0097-z29744131
  96. Zarit S, Reever K, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980;20:649–55.7203086
  97. Chang VT, Hwang SS, Feuerman M. Validation of the Edmonton Symptom Assessment Scale. Cancer 2000;88:2164–71.10813730
  98. Chang VT, Hwang SS, Feuerman M, Kasimis BS, Thaler HT. The memorial symptom assessment scale short form (MSAS-SF). Cancer 2000;89:1162–71.10964347
  99. Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, et al. EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer? Palliat Med 2006;20:59–61. 10.1191/0269216306pm1133xx16613400
  100. Nicholson C, Davies JM, George R, Smith B, Pace V, Harris L, et al. What are the main palliative care symptoms and concerns of older people with multimorbidity? – a comparative cross-sectional study using routinely collected Phase of Illness, Australia-modified Karnofsky Performance Status and Integrated Palliative Care Outcome Scale data. Ann Palliat Med 2018;7(Suppl. 3):S164–75. 10.21037/apm.2018.06.0730180731
  101. Finn L, Malhotra S. The development of pathways in palliative medicine: definition, models, cost and quality impact. Healthcare 2019;7:E22.
  102. Saygili M, Çelik Y. An evaluation of the cost-effectiveness of the different palliative care models available to cancer patients in Turkey. Eur J Cancer Care 2019;28:e13110. 10.1111/ecc.13110
  103. Cassel JB, Albrecht TA. Emerging models of providing oncology palliative care. Semin Oncol Nurs 2018;34:202–14.30100367
  104. Beasley A, Bakitas MA, Edwards R, Kavalieratos D. Models of non-hospice palliative care: a review. Ann Palliat Med 2019;8:S15–S21. 10.21037/apm.2018.03.1129860852
  105. Pinto C, Bristowe K, Witt J, Davies JM, de Wolf-Linder S, Dawkins M, et al. Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study. Ann Palliat Med 2018;7:S137–50. 10.21037/apm.2018.09.0230339764
  106. Bradshaw A, Santarelli M, Mulderrig M, Khamis A, Sartain K, Boland JW, et al. Implementing person-centred outcome measures in palliative care: an exploratory qualitative study using Normalisation Process Theory to understand processes and context. Palliat Med 2021;35:397–407. 10.1177/026921632097204933249996
  107. Raj R, Ahuja K, Frandsen M, Murtagh FEM, Jose M. Validation of the IPOS-renal symptom survey in advanced kidney disease: a cross-sectional study. J Pain Symptom Manage 2018;56:281–7.29729346
  108. Oriani A, Guo P, Gadoud A, Dunleavy L, Kane P, Murtagh FEM. What are the main symptoms and concerns reported by patients with advanced chronic heart failure? – a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS). Ann Palliat Med 2019;8:775–80. 10.21037/apm.2019.08.1031594366
  109. Davies JM, Sleeman KE, Leniz J, Wilson R, Higginson IJ, Verne J, et al. Socioeconomic position and use of healthcare in the last year of life: a systematic review and meta-analysis. PLOS Med 2019;16:e1002782. 10.1371/journal.pmed.100278231013279
  110. Bainbridge D, Seow H, Sussman J. Common components of efficacious in-home end-of-life care programs: a review of systematic reviews. J Am Geriatr Soc 2016;64:632–9. 10.1111/jgs.1402527000336
  111. Brereton L, Clark J, Ingleton C, Gardiner C, Preston L, Ryan T, Goyder E. What do we know about different models of providing palliative care? Findings from a systematic review of reviews. Palliat Med 2017;31:781–97. 10.1177/026921631770189028376681
  112. The National Council for Palliative Care. National Survey of Patient Activity Data for Specialist Palliative Care Services. London: The National Council for Palliative Care; 2016.
  113. Curtis L, Burns A. Unit Costs of Health and Social Care 2018. Canterbury: PSSRU, University of Kent; 2018.
  114. Gardiner C, Ryan T, Gott M. What is the cost of palliative care in the UK? A systematic review. BMJ Support Palliat Care 2018;8:250–7. 10.1136/bmjspcare-2018-001519
  115. Mahoney FI, Barthel DW. Functional evaluation: The Barthel Index. Md State Med J 1965;14:61–5.
  116. Wade DT, Collin C. The Barthel ADL Index: a standard measure of physical disability? Int Disabil Stud 1988;10:64–7.3042746
  117. Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. Qual Health Care 1999;8:219–27. 10.1136/qshc.8.4.21910847883
  118. Murphy EL, Murtagh FE, Carey I, Sheerin NS. Understanding symptoms in patients with advanced chronic kidney disease managed without dialysis: use of a short patient-completed assessment tool. Nephron Clin Pract 2009;111:c74–80. 10.1159/00018317719088482
  119. Bausewein C, Le Grice C, Simon S, Higginson I; PRISMA. The use of two common palliative outcome measures in clinical care and research: a systematic review of POS and STAS. Palliat Med 2011;25:304–13. 10.1177/026921631039598421464119
  120. Collins ES, Witt J, Bausewein C, Daveson BA, Higginson IJ, Murtagh FE. A systematic review of the use of the Palliative Care Outcome Scale (POS) and the Support Team Assessment Schedule (STAS) in palliative care. J Pain Symptom Manage 2015;50:842–53.e19. 10.1016/j.jpainsymman.2015.07.01526335764
  121. Eagar K, Watters P, Currow DC, Aoun SM, Yates P. The Australian Palliative Care Outcomes Collaboration (PCOC) – measuring the quality and outcomes of palliative care on a routine basis. Aust Health Rev 2010;34:186–92. 10.1071/AH0871820497731
  122. Masso M, Allingham SF, Johnson CE, Pidgeon T, Yates P, Currow D, Eagar K. Palliative Care Problem Severity Score: reliability and acceptability in a national study. Palliat Med 2016;30:479–85. 10.1177/026921631561390426503920
  123. Higginson IJ, Bausewein C, Reilly CC, Gao W, Gysels M, Dzingina M, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med 2014;2:979–87. 10.1016/S2213-2600(14)70226-725465642
  124. Selman L, Speck P, Gysels M, Agupio G, Dinat N, Downing J, et al. ‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study. Health Qual Life Outcomes 2013;11:94. 10.1186/1477-7525-11-9423758738
  125. Witt J, Murtagh FEM, de Wolf-Linder S, Higginson IJ, Daveson BA. Introducing the Outcome Assessment and Complexity Collaborative (OACC) Suite of Measures. London: King’s College London; 2014.
  126. Johnson MJ, Allgar V, Chen H, Dunn L, Macleod U, Currow DC. The complex relationship between household income of family caregivers, access to palliative care services and place of death: a national household population survey. Palliat Med 2018;32:357–65. 10.1177/026921631771182528590165
  127. Dumont S, Jacobs P, Turcotte V, Anderson D, Harel F. The trajectory of palliative care costs over the last 5 months of life: a Canadian longitudinal study. Palliat Med 2010;24:630–40. 10.1177/026921631036845320501512
  128. Culyer AJ. Need: the idea won’t do – but we still need it. Soc Sci Med 1995;40:727–30.7747207
  129. Feldhaus I, Mathauer I. Effects of mixed provider payment systems and aligned cost sharing practices on expenditure growth management, efficiency, and equity: a structured review of the literature. BMC Health Serv Res 2018;18:996. 10.1186/s12913-018-3779-130587185
  130. Quentin W, Geissler A, Wittenbecher F, Ballinger G, Berenson R, Bloor K, et al. Paying hospital specialists: experiences and lessons from eight high-income countries. Health Policy 2018;122:473–84.29673803
← Implications for decision-makersAcknowledgements →

Attribution. Fliss EM Murtagh; Ping Guo; Alice Firth; Ka Man Yip; Christina Ramsenthaler; Abdel Douiri et al. (2023). A casemix classification for those receiving specialist palliative care during their last year of life across England: the C-CHANGE research programme. National Institute for Health and Care Research. Copyright © 2023 Murtagh et al. Licensed under CC BY 4.0. NCBI Bookshelf NBK597740. CC BY 4.0. Original source ↗. Text reproduced from the Bookshelf XML without changing wording; figures, images and supplements are not reproduced.

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